Thursday, 25 August 2011

Parkinson's UK

Parkinson’s UK – the support and research charity - is committed to improving life for everyone affected by Parkinson’s.

Members of Parkinson’s UK in Makerfield met with me this week at the Wigan and Leigh Carers Centre in Hindley to talk about the issues that affect people with Parkinson’s and their carers.

Parkinson’s UK campaigns for people with Parkinson’s to have access to the health and social care they need, for scientific research into Parkinson’s to easily take place, and for people to have the financial support to stay independent and pay for their medication.

Katherine French, Influence and Service Development Officer of Parkinson’s UK said, “We invited Yvonne  to visit the branch, so we could tell her what we wanted her to do for Parkinson’s in her capacity as MP."

“We were delighted that she took the time to meet with us and listen to our concerns about the changes to the benefits system, prescription charges and the replacement of the Parkinsons Nurse who is leaving her post shortly. People said after the meeting how important it was to be able to talk open and honestly and have their views listened to and thanked her for taking time out to meet with them.”

Meeting people with Parkinson’s face-to-face has been a real eye-opener. I can now see the problems faced by carers and people with the condition. I want to do everything in my power to make sure people affected by Parkinson’s have all the support they need.

In particular, many people present were very concerned about the impact of the provisions of the Welfare Reform Act and the effect it will have on both them and their carers as it may mean they will wait longer for benefits and have the additional stress of being retested every year despite knowing that their condition will not improve.

For information and support call the Parkinson’s UK free confidential helpline on 0808 800 0303 or visit Parkinson's on the web.


No comments:

Post a comment